Lilly’s family was reunited early this year, but Chloe says their life will never be the same again. Lilly will need regular chemo until mid-2022, and the separation has taken its toll on the family. Chole says,
“Anger and hurt are the main emotions my other kids are feeling and letting out, which makes everything with Lilly a thousand and one times harder. This is a whole new world for me, and I don’t know what I’m doing.”
Earlier this year we invited Chloe and her kids to take a break at one of our Family Camps, an opportunity to have some fun, reconnect with each other and meet other families who understand what they are going through.
“That was our first time as a family doing anything since the diagnosis that’s not been in my home. So it was huge for us all.”
While they were at camp, Chloe shared Lilly’s difficulties returning to school with the Camp Quality team.
“On her second day of school she had a child pull her nasogastric tube. It came right off her face, and it was about 10cm out. And then she had a direct exposure to chicken pox.”
With Lilly’s suppressed immune system, exposure to any childhood illness could be life-threatening.
Another parent confided in Chloe that their child was scared to play with Lilly after she’d lost her hair. Chloe realised it was something she needed help to address.
Camp Quality arranged for a school visit from the Camp Quality Puppets (Primary School Cancer Education Program) to help Lilly’s classmates understand what she had been through. Simple things, like explaining that they couldn’t catch cancer, made Lilly’s life so much easier.
Camp Quality is in the process of further developing our school puppet shows for streaming, so they can be accessed by teachers anytime, anywhere in Australia.