Treatment is a grueling two-year ordeal which lowers Theo’s immunity, making even the slightest cold potentially life-threatening. Between the pandemic and cancer, Theo has spent most of his life isolated at home or in hospital.
For Theo’s dad Kyle, seeing his son’s life limited to their home or a hospital ward has been really difficult. He says,
“Watching Theo decline so rapidly was just soul crushing, just seeing your boy change like that and you can’t do anything about it. But you just have to be there with a smile on your face and try and make every moment fun for him.”
One of Theo’s biggest challenges has been watching his older sister, Addison running and playing outside and not being able to join her. Kyle says,
“He wants to do it, but he just physically can’t. The steroids really slow him down. You can look in his eyes and tell that he doesn’t understand what’s happening and why it’s happening.”
At the time of Theo’s diagnosis, Ebony was 29 weeks pregnant. She and Kyle welcomed their baby girl, Finley, to the family a couple of months into Theo’s treatment. Kyle describes Finley’s arrival as a welcome distraction.
“She’s been a little ray of sunshine.”